Tuesday, December 20, 2011

Tuesday News

Cassie seems to be doing well. Her fevers don't seem to be an issue anymore and her CRP is still dropping-we are at 5 today. These are good things. Her swelling is coming down quite well and she is looking a little more like our baby. She is generally happy and drinking well. Pretty amazing that she isn't angry or feeling sorry for herself. (A lot of times I take that position for her :) Dr. Riva-Cambrin says that is why he loves working with kids and that she is "tough as nails."

Her iv fluids have been increased to help her flush the toxins out of her body. She is "splotchy' but not nearly as red as she was. We didn't have a very restful night because her heart rate was dipping low several times. The increased fluids should help with that issue. I don't remember low heart rate ever being a problem with her- usually it's the opposite. All the doctors seem to be really pleased with how she is doing- and we are cautiously optimistic.

She has really been enjoying stickers today, her play doh, and watching Wall E. We slept with Wall E playing all night long. Teresa and Nate have been here making play doh "snakes" with her today and getting her to use leftie every now and again. Her surgeon said it is possible that some of the reluctance to use her left arm may have had to do with that infection and pressure on her right frontal lobe. She is moving it better and is not nearly as sensitive about us touching it. We had her walk down the hall for a little while, assisted, but she is very wobbly. We will have to be patient for the rehab part too.

The doctors have decided that tomorrow they will take her off of two of the three antibiotics and see how things go. She will then be observed for a couple days see if we are on the right path with the Nafcillin. We think this journey at the hospital may be coming to a close, God willing. Thank you for your continued love.

11 comments:

  1. That is such a happier face! I LOVE it!

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  2. she looks SO MUCH better in that picture!!! Best news I have heard all day. Hope she continues to improve in leaps and bounds!!

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  3. Nothing like blue and red beads to go with her leads! She looks so much better! Thanks for updating the "world" on her progress. I've been waiting all day for an update.

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  4. Horray for that smile...I can hardly see to type thru my tears. Totally loving the beads and no shirt look. Good days and good news is what we like! Just got back from the salon..Josie has a cute bob haircut...jk Steve! She looks cute. Gustavo gets a cut on sat.

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  5. We are praying for her every day, especially my 8 year old. She won't let anyone forget to mention "Baby Cassidy" in their prayers.
    Cassidy looks so much happier today. I agree with her doctor, she is "tough as nails". I hope things continue to move in this direction. I can't believe how quickly her CRP levels are dropping. That is great news.
    Stay strong. It will only get better from here, and she will amaze you with "leftie" once the infection is completely gone.

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  6. Oh wow, I'm with Val, I can hardly see through my tears. She looks incredible and so much better. What wonderful news! Lots and lots of love and prayers.

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  7. I love her smile. Happy to see that today!

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  8. Well, I've cried twice already today. Her picture is so amazingly great!! Wow! Like I say, she is a CHAMP! I love her with all my heart! You, too, Ali and Steve. Our prayers have been heard. Love you! MOM (Grandma)

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  9. Her smile warms my heart and opens the floodgates. I, and my ward, are keeping Cassidy in our prayers. When she is ready for it, I have a snowman ornament that would like to keep her company. It lights up (and changes colors)...along with the snowman, I know we're all waiting to see more of her smiles.

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  10. She is beaming! This makes me so happy. I'm trying not cry at work but I just don't care anymore. I loved watching her push her finger into the playdoh and make the "squishh" noise. Now I'm suddenly humming "we are the champions" in my head. Cassie is definitely the champ!

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