Testing, Testing, 1 - 2 - 3

Since our last update we've had a Bone Scan, Chest X-Rays, Blood Cultures, and Urine testing that have all come back negative. Yesterday afternoon they took her for a CT scan of her abdomen and finally found evidence of a kidney infection. The resident explained that the antibiotic must have been killing the bacteria in the urine so it wasn't showing up in the analysis. To paraphrase their words, this is an explanation for the fever and CRP levels but not a conclusive explanation.

This afternoon marked 48 hours without a high grade fever, but our joy was dashed 2 hours ago with a fever of 101.5 temperature which is just over the threshold they set for her. Since then we've had to endure more Blood and Urine Cultures which have gotten to be very difficult to collect.

We still have a very sick girl and we aren't 100% sure why. This is getting old. She is supposedly getting her lumbar drain clamped tomorrow and removed Monday, so that may make her happier. This is certainly a day by day adventure. We were so happy this morning but going to bed again with worry. Thank you for not forgetting us.

The question was asked, how many times has she been sedated for different procedures? With the original MRI Nov. 17 our total count is 9 times in a 23 day period. (3 general anest. for 3 surgeries, and 6 conscious sedations). Oh the irony! I had cancelled the original MRI several weeks ago worrying about having her sedated unnecessarily.