Saturday, December 10, 2011

Testing, Testing, 1 - 2 - 3

Since our last update we've had a Bone Scan, Chest X-Rays, Blood Cultures, and Urine testing that have all come back negative. Yesterday afternoon they took her for a CT scan of her abdomen and finally found evidence of a kidney infection. The resident explained that the antibiotic must have been killing the bacteria in the urine so it wasn't showing up in the analysis. To paraphrase their words, this is an explanation for the fever and CRP levels but not a conclusive explanation.

This afternoon marked 48 hours without a high grade fever, but our joy was dashed 2 hours ago with a fever of 101.5 temperature which is just over the threshold they set for her. Since then we've had to endure more Blood and Urine Cultures which have gotten to be very difficult to collect.

We still have a very sick girl and we aren't 100% sure why. This is getting old. She is supposedly getting her lumbar drain clamped tomorrow and removed Monday, so that may make her happier. This is certainly a day by day adventure. We were so happy this morning but going to bed again with worry. Thank you for not forgetting us.

The question was asked, how many times has she been sedated for different procedures? With the original MRI Nov. 17 our total count is 9 times in a 23 day period. (3 general anest. for 3 surgeries, and 6 conscious sedations). Oh the irony! I had cancelled the original MRI several weeks ago worrying about having her sedated unnecessarily.

1 comment:

  1. Hang on! Praying this morning I wondered if we have not learned enough yet. Our faith can be fragile and sometimes Heavenly Father tests us to a point we think we might not be able to hang on. He wants to know that we trust Him and we will HANG ON, NO MATTER WHAT! I know that Heavenly Father is proud of the way you love and are caring for our sweet angel, Cassie. You are the best parents!! Thank heaven for Grandma Allen, sisters, brothers (in laws, too!), aunts, uncles, grandparents, friends, and family who are stepping in to help every day. You and your family are loved so much! Kisses and hugs to Cassie. Love, MOM