So we'll have a party, a little one, but a party nonetheless and we'll keep hoping and praying for her continued strength.
Saturday, March 17, 2012
It's back. But never fear, Dr. Blackburn says as the C Diff toxins leave her body it can sluff off in the stool and give us a positive reading. That doesn't necessarily mean it's still acute. She really doesn't have the other awful symptoms we had seen over the last several weeks so we are hopeful that her body is fighting it and that it is on it's way out. She is still on the lactobacillus to try and encourage the growth of good bacterias and we are limiting her intake of dairy products as they apparently don't help foster the growth of the rough lining she needs back in her intestines. So there's an update. We don't want to put her on the Vancomycin unless we know she absolutely needs it. I have learned a lot about antibiotics and how serious their side effects can be. You certainly don't want to be taking them unless you truly need to.
Friday, March 16, 2012
I am tired of being sick!
Enquiring minds want to know how Cassie is doing lately (and bless you for still caring!) I'd love to report that we are back to living happily ever after, but we aren't quite there yet. For the most part things are good. She has had a great week, but we are fearful that the C Diff might not be completely kicked. I took a stool sample in today to have it tested. Maybe I'm just so used to her being sick that I can't believe she's really better, or maybe she really isn't better yet. I guess we will know by tomorrow morning. If it's back we'll be putting her on a Vancomycin taper. BOOO. If it's gone we'll have a party!!!!
We have chosen a new pediatrician and we are so thrilled with him. Dr. Marcus Blackburn is our man. He came at the recommendation of our ID docs because he did residency with them a few years back. We are very impressed with him and love the balance he seems to have between medical competency, compassion, and humor. He doesn't seem at all stressed about the complexity of her case and had even read her "novel" of notes from the hospital before meeting her for the first time last week. He has called to check on her a couple times already-I am in love!